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3 YEARS WITH MY JPOUCH!

I don’t know why I felt so pressured to post this today. I’ve pretty much been saying the same thing for years. My Jpouch has given me this life I never imagined possible. The road hasn’t been easy. It’s been long and trying. The surgeries alone made me want to quit, but I didn’t. I’m happy that I have my Jpouch and I’m so grateful for good healthcare and great health insurance for allowing me to get it!

On this day, 3 years ago I had a major surgery that gave me a second chance at life. . Before my #Ostomy, then #Jpouch, I had no life. All I knew was pain. I isolated myself. I hid my hurt and ultimately chose to suffer in silence. I didn’t know what “life” was because I’d been suffering for so long, I was truly just surviving. . I was constantly in and out of hospitals, offices, one apt, one surgery, one failed medication at a time. I thought my suffering would never end. I remember the day I found out my injections weren’t working. Then infusions. I alwaysss try to fight back tears at my doctor’s office. I try to be “strong” and “brave” whatever that means. – But I felt like my body would always work against me. . I remember getting so sick before my first surgery that I laid down on the floor of my house in a ball. I couldn’t move. I was so weak. I thought for the longest I could pray my condition away, when that didn’t work I felt like God and my body betrayed me. . I couldn’t count the number of hours I’ve spent crying alone in my car after getting news that we would have to try ‘one more med’ or that I would need to be hospitalized for *insert any abnormality here* . I was diagnosed with Ulcerative Colitis at 17. I didn’t even understand what it meant. – What I soon realized is I wasn’t alone. There are so many stigmas and misconceptions tied to Ulcerative Colitis and IBD as a whole. A major part of the reason why I decided to suffer silently for so long. . At 26, I’m happy. I may not be society’s definition of ‘healthy,’ but I’ve come far. I’m not ashamed of my diagnosis or what I’ve had to endure to get to where I am today. . I’m so grateful for my Jpouch and how it’s turned my life around. * This is not a promo for the Jpouch. This is a promo for you to do what’s best for YOU. *

A post shared by Shawn | Chronically Strong (@chronicallystrongblog) on

If you haven’t read my story of being diagnosed, trying (and failing) medications, deciding to go to surgery, ect. You can Read That Here. I also have some pretty cool New Things on YouTube. Be sure to check that out and subscribe!

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What They're Saying

"Shawn. I see what you're doing in the IBD community. You're doing phenomenal things! Prayers for your personal journey as well as I know it can't be easy."

Felicia Robertson, MD June 23 2017
2017-09-08T14:16:02-04:00
"Shawn. I see what you're doing in the IBD community. You're doing phenomenal things! Prayers for your personal journey as well as I know it can't be easy." Felicia Robertson, MD June 23 2017

"You're the best! So glad you joined (the Patient Advisory Council of ImproveCareNow) and I hope we can get to know eachother better! Looking at your blog girl it's amazing. You're a beautiful writer and fighter."

 

Natalie B, PAC ImproveCareNow, April 29 2017
2017-09-08T14:21:19-04:00
"You're the best! So glad you joined (the Patient Advisory Council of ImproveCareNow) and I hope we can get to know eachother better! Looking at your blog girl it's amazing. You're a beautiful writer and fighter."   Natalie B, PAC ImproveCareNow, April 29 2017

"Chronically Strong is an absolutely beautiful blog filled with information about Ulcerative Colitis, Chronic Bowel Disease and Mental Health just to name a few. (Shawntel) has excellent healthy eating tips as well as a focus on overall wellness and nutrition, and recipes."

Leanne, Blogger, Aug. 2 2017
2017-09-08T14:26:29-04:00
"Chronically Strong is an absolutely beautiful blog filled with information about Ulcerative Colitis, Chronic Bowel Disease and Mental Health just to name a few. (Shawntel) has excellent healthy eating tips as well as a focus on overall wellness and nutrition, and recipes." Leanne, Blogger, Aug. 2 2017

" I've never found you to be anything but inspiring. Your honesty is refreshing and I like when people keep it real. Makes me feel it's ok to be human."

 

Sara R, Sep. 12 2017
2017-09-12T22:05:16-04:00
" I've never found you to be anything but inspiring. Your honesty is refreshing and I like when people keep it real. Makes me feel it's ok to be human."   Sara R, Sep. 12 2017

Though mostly about IBD, this blog covers a wide array of issues.  Shawn covers complex issues, like how her identity as an African American intersects with her IBD.  I am taken aback by the depth of each post! Whether you’re a blogger or an IBDer, her posts are sure to offer tons of inspiration.

 

Collin, Jan. 9, 2019
2019-01-09T22:11:58-04:00
Though mostly about IBD, this blog covers a wide array of issues.  Shawn covers complex issues, like how her identity as an African American intersects with her IBD.  I am taken aback by the depth of each post! Whether you’re a blogger or an IBDer, her posts are sure to offer tons of inspiration.   Collin, Jan. 9, 2019