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Advisory Board

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Patient Advocate | IBD Advisory Board

Nov 4th I attended another Patient Advisory Board, this time in Atlanta, GA. The last meeting was for the company to learn more about life with Ulcerative Colitis. How we handle our relationships, manage our jobs, support systems, ect.


This go around it was a little different. We discussed treatments and I actually did learn quite a bit about the medications I’d been taking for years. I’m excited to dream up some educational materials in the future regarding the different categories and characteristics of some pretty popular rx.

(Chart of things we wish we’d have known about life with UC)

It was so interesting to hear everyone’s treatment history.


It was awesome seeing everyone again! The first meeting everyone came and left as friends, by the second… we were family.


The company is meeting with patient advocates to “bridge the gap in healthcare. ” Get a better understanding from a patient perspective to improve medicine, healthcare, and how we communicate with our physicians!


There are no words to describe how amazing it is to be in a room full of people who understand.

DISCLAIMER: This content is over 2 years(s) old. Information may be outdated. Please, read this page keeping its age in mind.

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What They're Saying

"Shawn. I see what you're doing in the IBD community. You're doing phenomenal things! Prayers for your personal journey as well as I know it can't be easy."

Felicia Robertson, MD June 23 2017
2017-09-08T14:16:02-04:00
"Shawn. I see what you're doing in the IBD community. You're doing phenomenal things! Prayers for your personal journey as well as I know it can't be easy." Felicia Robertson, MD June 23 2017

"You're the best! So glad you joined (the Patient Advisory Council of ImproveCareNow) and I hope we can get to know eachother better! Looking at your blog girl it's amazing. You're a beautiful writer and fighter."

 

Natalie B, PAC ImproveCareNow, April 29 2017
2017-09-08T14:21:19-04:00
"You're the best! So glad you joined (the Patient Advisory Council of ImproveCareNow) and I hope we can get to know eachother better! Looking at your blog girl it's amazing. You're a beautiful writer and fighter."   Natalie B, PAC ImproveCareNow, April 29 2017

"Chronically Strong is an absolutely beautiful blog filled with information about Ulcerative Colitis, Chronic Bowel Disease and Mental Health just to name a few. (Shawntel) has excellent healthy eating tips as well as a focus on overall wellness and nutrition, and recipes."

Leanne, Blogger, Aug. 2 2017
2017-09-08T14:26:29-04:00
"Chronically Strong is an absolutely beautiful blog filled with information about Ulcerative Colitis, Chronic Bowel Disease and Mental Health just to name a few. (Shawntel) has excellent healthy eating tips as well as a focus on overall wellness and nutrition, and recipes." Leanne, Blogger, Aug. 2 2017

" I've never found you to be anything but inspiring. Your honesty is refreshing and I like when people keep it real. Makes me feel it's ok to be human."

 

Sara R, Sep. 12 2017
2017-09-12T22:05:16-04:00
" I've never found you to be anything but inspiring. Your honesty is refreshing and I like when people keep it real. Makes me feel it's ok to be human."   Sara R, Sep. 12 2017

Though mostly about IBD, this blog covers a wide array of issues.  Shawn covers complex issues, like how her identity as an African American intersects with her IBD.  I am taken aback by the depth of each post! Whether you’re a blogger or an IBDer, her posts are sure to offer tons of inspiration.

 

Collin, Jan. 9, 2019
2019-01-09T22:11:58-04:00
Though mostly about IBD, this blog covers a wide array of issues.  Shawn covers complex issues, like how her identity as an African American intersects with her IBD.  I am taken aback by the depth of each post! Whether you’re a blogger or an IBDer, her posts are sure to offer tons of inspiration.   Collin, Jan. 9, 2019