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IBD, Remicade & Vitamin D, Oh My!

The body uses vitamin D to absorb calcium and promote healthy bone growth. Vitamin D is also used to support other functions in the body. According to the Gastroenterology and Hepatology Independent Peer Reviewed Journal (published in 2016), up to 60% – 70% of people living with Inflammatory Bowel Disease have insufficient vitamin D levels.

As an IBD patient and advocate this is worrisome to me. It is important for IBD patients to be treated, not only for inflammation and discomfort, but for overall health. Living with Ulcerative Colitis, Crohn’s, and other forms of Inflammatory Bowel Disease is already difficult. Dealing with the everyday stressors of managing medications, surgeries, colonoscopies, and stigma associated with IBD is a full time job.  – It’s easy to forget about our overall health when we are already juggling a laundry list of health “to-dos”.

The good news is, researchers are working to study vitamin D as a supplement in IBD patients! This is why I’ve partnered with Clara Health, a company working to connect patients to clinical trials and support them through the process, to shed some light on an opportunity that may be a fit for you.

High Dose Interval Vitamin D Supplementation in Patients With IBD Receiving Remicade

Boston’s Children Hospital is sponsoring a study to test new treatments, or new ways of using existing treatments. During this study subjects will be receiving 50,000 units of Vitamin D3 if they receive their Remicade infusions every 4-6 weeks. Study subjects will be receiving 100,000 units of Vitamin D3 if they receive Remicade infusions every 6-8 weeks.

Who is this study looking for? Don’t worry! They’re not too picky! People of any sex, between the ages of 7 and 25 years old. – These patients need to have an existing diagnosis of Inflammatory Bowel Disease and measured serum level of 25-OH Vitamin D of 15-29 ng/ml in the last 8 weeks and no changes in Vitamin D supplementation in the interim. Fifty participants are needed for this study. If you’re interested in learning more about this study, or to see if you qualify: click here. To learn about other studies or ways you can contribute your voice: click here.

Of course, everything has stipulations and limitations. Unfortunately, the study is not currently looking for individuals who meet the following criteria:

  • Pregnant Women
  • History of underlying kidney disease
  • History of granulomatous disease
  • Inability to take oral Vitamin D
  • History of hypercalcemia or hypercalciuria
  • Currently taking an anti-epileptic medication
  • History of pre-existing liver disease (excluding primary sclerosing cholangitis, non-alcoholic fatty liver disease, or steatohepatitis)

This trial is in the final stage before a treatment is approved for general use, what’s also known as “Phase 3.” By participating you can pave the way for other patients living with IBD.

Don’t quite qualify for this study? Interested in spreading the word and sharing your patient experience? As an advocate I encourage patients to become partners in their own healthcare. To make their healthcare collaborative. It’s important patients share their voice and contribute to the community whenever and wherever possible. If you’re interested in getting involved and raising awareness about clinical trials, click here to join Clara Health’s Breakthrough Crew! We’re just a group of people, thriving with chronic conditions, trying to make a difference! I hope you’ll join us.

Let's have a conversation! Leave a comment!

What They're Saying

"Shawn. I see what you're doing in the IBD community. You're doing phenomenal things! Prayers for your personal journey as well as I know it can't be easy."

Felicia Robertson, MD June 23 2017
2017-09-08T14:16:02-04:00
"Shawn. I see what you're doing in the IBD community. You're doing phenomenal things! Prayers for your personal journey as well as I know it can't be easy." Felicia Robertson, MD June 23 2017

"You're the best! So glad you joined (the Patient Advisory Council of ImproveCareNow) and I hope we can get to know eachother better! Looking at your blog girl it's amazing. You're a beautiful writer and fighter."

 

Natalie B, PAC ImproveCareNow, April 29 2017
2017-09-08T14:21:19-04:00
"You're the best! So glad you joined (the Patient Advisory Council of ImproveCareNow) and I hope we can get to know eachother better! Looking at your blog girl it's amazing. You're a beautiful writer and fighter."   Natalie B, PAC ImproveCareNow, April 29 2017

"Chronically Strong is an absolutely beautiful blog filled with information about Ulcerative Colitis, Chronic Bowel Disease and Mental Health just to name a few. (Shawntel) has excellent healthy eating tips as well as a focus on overall wellness and nutrition, and recipes."

Leanne, Blogger, Aug. 2 2017
2017-09-08T14:26:29-04:00
"Chronically Strong is an absolutely beautiful blog filled with information about Ulcerative Colitis, Chronic Bowel Disease and Mental Health just to name a few. (Shawntel) has excellent healthy eating tips as well as a focus on overall wellness and nutrition, and recipes." Leanne, Blogger, Aug. 2 2017

" I've never found you to be anything but inspiring. Your honesty is refreshing and I like when people keep it real. Makes me feel it's ok to be human."

 

Sara R, Sep. 12 2017
2017-09-12T22:05:16-04:00
" I've never found you to be anything but inspiring. Your honesty is refreshing and I like when people keep it real. Makes me feel it's ok to be human."   Sara R, Sep. 12 2017

Though mostly about IBD, this blog covers a wide array of issues.  Shawn covers complex issues, like how her identity as an African American intersects with her IBD.  I am taken aback by the depth of each post! Whether you’re a blogger or an IBDer, her posts are sure to offer tons of inspiration.

 

Collin, Jan. 9, 2019
2019-01-09T22:11:58-04:00
Though mostly about IBD, this blog covers a wide array of issues.  Shawn covers complex issues, like how her identity as an African American intersects with her IBD.  I am taken aback by the depth of each post! Whether you’re a blogger or an IBDer, her posts are sure to offer tons of inspiration.   Collin, Jan. 9, 2019