Day 3 of IBD Awareness Week I want to share a quick message to the newly diagnosed. This is not medical information. It’s more like a virtual hug.
So you’ve just been diagnosed with IBD, and you probably don’t know where to start. What’s next? – And that’s okay. It’s been over 6 years since my diagnosis and I just recently started figuring things out (for myself). Take your time. It’s okay to not be okay with your diagnosis (at first). After all, you’ve just been told you have a chronic illness, that’s a big deal!
To The Newly Diagnosed:
Being that you’ve just been diagnosed, you may be experiencing active symptoms right now. A lot of these symptoms may be embarrassing to you. It may take some time to open up about your illness. – And that too, is okay. BUT, I do advise talking about it. There are a lot of resources and people online that have been through exactly what you’re going through right now. The first time I talked to someone with my illness was like a weight lifted off of my shoulders. I didn’t know how amazing it would feel to talk to someone who understands. – Eventually you get tired of having to explain things to people. Having someone who just gets it is priceless.
Having IBD is something like an emotional rollercoaster. I was speaking with a few people recently and I mentioned my Anxiety (which I do take RX for off-and-on). To my surprise, my friends experienced the same.
It can get depressing.
– and isolating. Sometimes you just want to be “normal” – I think all IBD sufferers can attest to that. Avoid comparing your life to the lives of others. Once you accept that you are different, you can start advocating for yourself. Making plans. Starting treatments. Never lose hope. All illnesses started somewhere.
Don’t lose faith that a cure will come.
The J-Pouch YouTube Live Chat is tomorrow at 8P EST! Click here to join.
As always, thanks for reading. Before you go:
Were you diagnosed with IBD? What has been your experience dealing with your condition? Let me know in the comments below!