When being diagnosed with a chronic condition, you may not realize just how much you have to rely on things and people you never imagined relying upon. This was especially true for myself being diagnosed with an autoimmune disease at only 17 years old. One huge thing I think many of us “veteran-spoonies” can relate on is our reliance upon quality healthcare and the healthcare system as a whole.
If you’re living in the US, you may be particularly aware of just how much the healthcare system can change. We’re left with two choices: sit back and accept it, or advocate for our rights.
While I love a good Instagram post just as much as anyone else, we must do more. Social media is only getting us so far. This is ultimately why I chose to attend a local meeting and speak with Congresswoman directly. Intimidating? Very. But you don’t have to know everything there is to know about politics to create an impact. You only need to know your story and your purpose.
I spoke with Amber Tresca of AboutIBD on this very topic. You don’t have to have IBD to listen in, this is actually relevant for anyone who’s looking to dip their feet in the waters of activism.