IBD stands for Inflammatory Bowel Disease. A group of auto-immune, [chronic] digestive diseases diseases. – Two of the most common and well-known being Crohn’s Disease and ulcerative colitis.
So what is World IBD Day?
World IBD Day happens annually on May 19th. This initiative was created to unite, empower and educate the (over 10 million) people living with various forms of Inflammatory Bowel Disease.
The Power of YOU
Since learning of World IBD Day a few years ago, I’ve always considered it somewhat of a holiday for those of us living with Inflammatory Bowel Disease/s.
This year particularly, I’ve found myself blown away by the power of patients and the stories we share. How far we’ve come is amazing and I am so grateful for it. Almost 10 years ago, I was diagnosed with ulcerative colitis and knew no one with my condition. Now you can connect with other patients by simply opening an app and search relevant hashtags or groups.
Because of this grateful “high” I’m living on, I didn’t feel the need to share pictures or treatments of the past this year. I no longer have the desire to “prove” how sick I am, nor do I want to show you how bad my condition can get. I’ve done that. There’s only so much I can do alone. Which is why I felt it necessary to partner with these amazingly powerful and strong advocates in the community.
Community is so important when living with Crohn’s, ulcerative colitis or any other form of Inflammatory Bowel Disease [or chronic illness in general]. Building your tribe is essential and someone in that tribe needs to have your condition. I am so grateful to Have Friends within the IBD Community and I highly encourage you to connect with your own, starting with these ladies.
IBD is truly a team effort. We have to come together. Collaborate, support one another and use individual strengths to show the world just how serious our conditions are and the true reality of living with IBD. — This is something I have not always been the best at in the past, but I am determined to improve on. We have to elevate each-other in order to amplify the patient voice and impact.